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What is cystic fibrosis in an infant?
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Default What is cystic fibrosis in an infant? - 12-23-2008, 04:51 PM

My son's doctor just told me that she wants my 9 month old son to get checked for cystic fibrosis and I am not sure of what it is. I have looked on the internet, but am still not really getting anything out of it. Does anyone have a child with it or know of someone that does? Thanks!
   
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Default 12-30-2008, 04:36 PM

CF is a genetic disease that basically causes problems with the lungs due to the amount of secretions that the body produces. It can be mild or severe. I know it is tempting to look it up on the internet, but if I were you I would resist and wait for the Dr. to dthe testing as you will only scare yourself because mostly the severe cases are discussed on websites. I have a friend who is 30 and has CF and he has had complications with it (especially in grade school), but leads a mostly normal life. Best wishes. If you really want to know the details, you can e-mail me.
   
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Default 02-22-2009, 10:17 AM

I have a 4 year old daughter with CF. She had a very rough start, but is doing pretty well on the whole. I agree with Erin M, don't look on the internet at this time ... it can be really scary. Treatments and understanding have come a very long way ... compared to even 10 years ago. I hope your son does not have CF, but if he does, it's best to find out now and get a jump on treating it. Please email me if you have any questions at all.
   
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