[Rachael]

i would think that your primary doctor could do some research. i know they are swamped but they have so many more outlets and have much more knowledge as to what is crap and what is truth. has your primary done anything to try to research this disorder?my niece has aspergers which is a form or autisim. when she was finally diagnosised the primary went out of her way to research what treatments would be best. maybe you need to search for a primary that has more time or is simply more willing to do some legwork for you.good luck to you. i hope you can change some minds and raise some awareness.

My prayers go to you and your son.We have experienced doctor ignorance with our daughter. They can't read everything, and the medical model is clear about following the research, not testimonials. So, my best advise to you is to discover any research already done on this topic, and any research underway, and become known. What I discovered is that researchers can be very lonely people, and many are so happy to discuss their research with someone who can understand and use the information, hearing from you can make their day. Contact with you and hearing of your son may help to rekindle enthusiasm, and provide you with other research contacts. Make certain your son's doctor has all of your research contacts and copies of the actual research publication, if possible.Keep the faith, as they say, and make contact with as many people as possible. You might even try St. Jude's Children's Research for a contact, but then, you have probably already done that.The best of luck to you and your son,Mother One