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Anyone afflicted with RSD-reflex sympathetic dystrophy??
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Default Anyone afflicted with RSD-reflex sympathetic dystrophy?? - 12-28-2008, 11:21 PM

I have had RSD for the past almost 6 yrs and its horrible. I havent met anyone else with it in person but have a great little support group online. After being a member of the larger ones that didnt work well or had too many people in them i started a smaller one yrs ago and decided to keep it small so we could all really get to know eachother and be a support.Id love to hear from anyone who has this or whod like to be a member of our family onlinerachael79rsd@gmail.comgroups name is rsdcrpsfriends on yahoogroups.com
   
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Default 01-02-2009, 02:05 AM

Hi Rachael,I've had CRPS for nearly 8 1/2 years. I've got to know quite a few people with it, though like you am yet to meet anyone else who's got it.I've applied to join your group- support from people who know what you're dealing with is I think important in any disease and especially so with RSD/CRPS given how few are aware of its existence. There are some really good groups around, but finding others is all good!
   
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